Tuesday, September 8, 2009

Blog # 1---Introduction and learning experience

Hello fellow bloggers,

My name is Claudia. I am a single mom attempting this "going back to school" thing. So far its very challenging! I try to divide my time but realize there isn't anymore time to divide. My son Ashton is eight years old. His older brother passed shortly after birth from prematurity. Austin would have been ten this year. My father passed away a month before so 1999 wasn't a great year for me. In 1996, I had brain surgery to remove an AVM. Later that same year, one of my older half brothers passed away from an infection when he had a car accident. Most people would have lived from it, however, he had AIDS and his immune system was already severly compromised. I have four sisters and a brother left of all seven of my siblings. My other brother died of septicism a few years ago. My mother still lives in GA in the house where my dad once lived.

Enough of introductions, I don't want to create a cloud of gloom or pity on my story because I'm sure there are some out there alot more challenging than mine.

I am new to blogging, never really considered it to be an outlet of emotions and thoughts but it reality unless my professors hadn't made this an assignment, I probably wouldn't be writing at this very moment. I tend to keep things bottled up and every once in a blue moon I have to have a cry day in my shower or on the beach near my home. You see I love the water and even though I live about 30 minutes from it, the gulf speaks to me in ways no one can.

I am learning, so much in this class. Not only technical stuff but about the disease that ultimately played a huge role in taking my brothers life. As kids we weren't very close. The three older ones were from a previous marriage of my dad's. When he met and married my mom I was already in the picture. I called him dad because he was the only father I ever knew. Dad was 25 years my mom's senior so the next four children came after me. I like to call us the second set of Phillips'. Steve, the baby boy of his first kids was very flamboyant. He was the "homosexual one" as everyone referrred to him, they one who strayed. That is until I came out around 26. I always knew I was a lesbian, since I was eight, but after he passed it took years for me to accept my orientation. I grew up in the 80's when AIDS wasn't researched enough and it was called the "gay cancer". That in itself scared me into keeping my secret hidden for years.

Recently, I read a book (of course an assignment) called What looks like crazy on an ordinary day by Pearle Cleage. Now I'm not a reader by any stretch of the imagination. I enjoy anything that grabs me by the turn of the first page. This one did just that. I wanted to personally introduce myself to Ava Johnson, the main character and give her a huge hug for portraying a real persons view of life with AIDS. She is so angry at people and their careless decisions and how I remember when my brother was so ill hospice came in and took over care and within a few weeks he lost his battle. I've seen movies since then like Philadelphia with Tom Hanks and realized that AIDS affects everyone! Straight, gay, black, white, male, female and it also has no age discrepency. This club accepts everyone!

My how far we've come in almost 30 years. There is a huge stigma to this disease but hopefully from this class I can learn to protect myself and teach others around me that its not a disease that confines one to their own devices. Everyone still needs touch, love and something to live for!

Talk to you guys soon. Its a pleasure meeting you. I hope I get to meet you in person someday.

I hate saying good bye because it seems so final. I say laterz

so until next time, laterz!

CEP

5 comments:

  1. Hi Claudia. I, too, am an older student. It sounds like you have had many challenges in your life but you are probably a stronger person for it and I admire your desire to move forward in life. I have not had any personal experience with HIV/AIDS so your personal contact with someone with the disease will be of interest to me. I am sorry that you have had so many losses in your life. This must have been very hard on you.

    I look forward to talking with you. I am mostly interested in HIV/AIDS research. Is there something in particular about the virus you like to study about?

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  2. Hi Morgan,

    I am very interested in the pathology of the disease. The mutation of the disease and diseases that create a lethal environment.

    Yes many challenges have made the person I am. No regrets! I feel you take too much away from your life if you have them. Definitely doesn't leave room for growth. This is going to be a great class. I can feel it in my bones! talk to ya soon

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  3. Claudia, your life seems very interesting. You seem like a strong individual that has faced many situations. I am also learning a lot form this class. I am 23 years old and have not had a ton of experience with HIV. Hopefully I can learn from you and your experience with this disease. In the past I have never known someone personally with this disease and for the most part my only interaction with it has been through books and articles. Anyway, hope to have further conversations about HIV/AIDS with you!

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  4. I enjoyed reading your first blog, Claudia. I can imagine how scared you must have been to hear that HIV was a 'gay' disease. What the media did to this population was outright wrong. One of my biggest complaints of American's is that we seem to always want to label something. I have often thought that if there was life outside of this planet I would tell them not to come for a visit because we would put them under a microscope and want to study them. We are not comfortable with differences and yet it is the differences that makes life so interesting.

    I'm sorry you lost your brother to this disease. Although I have not lost a family member, yet, I have lost a number of friends and acquaintances. I don't want the experience of losing a family member so I am hoping that my daughter outlives me by 60 or so years.

    I lost my dad last year so I understand how hurtful that is. I miss him and my mother.

    You are correct when you say HIV doesn't discriminate. This club is open to anyone. I look forward to reading your blogs and watching your growth over the semester.

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  5. Hi Claudia,

    It sure sounds like you are no stranger to loss. I have learned over time that loss of family members just becomes tolerable over time. The night after my late partner Dennis died, I thought I would never feel joy or happiness again. I felt like I had taken a bad fall, and that my insides had abrasions. Those first few days I never imagined I would feel better. That was almost 21 years ago, and I still miss Dennis to this day. There are times when I see something that he would really enjoy and I get all misty.

    I was probably infected back in the late 70s, since I was a raging alcoholic and quite frankly, a whore. I have lost so many friends and acquaintances that I’ve lost count, and to tell the truth, sometimes I feel “survivor’s guilt.”

    I’m glad that you are in this class. You will be a valuable asset with your personal experience and closeness to AIDS.

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